About DIPG

Educate Yourself About DIPG

Walking by Faith With Ne’Vaeh  is committed to raising awareness about Diffuse Intrinsic Pontine Glioma (DIPG). Read further to learn more about the disease.

  • DIPG is a brain tumor found in the pons, which is a part of the brainstem located on the lower back of the brain and near the top of the spinal cord.

  • DIPG comprises 10-15% of all brain tumors in children. Annual reports show that 100-150 new diagnoses occur in the United States and about 300 in North America and Europe.

  • Over the last three decades, there has been little progress on the improvement of treatments and cure rates for DIPG. Fewer than 10% of children affected survive two years from diagnosis.

  • The disease is the most common cause of death due to brain tumor in children. Most diagnoses occur in children between four and 11 years old.

  • Most studies show that the median survival for DIPG only takes less than a year from diagnosis.

  • Currently, there is no known cause or effective treatments for DIPG. There is also no evidence that the disease is caused by any environmental factors such as chemical or radiation exposure. Additionally, there are no proofs showing that specific inherited genetic variations contribute to the disease.

  • More than 90% of children with DIPG will die within two years from diagnosis, while most of them will live from 9-12 months. The last few months of the child’s life are excruciatingly difficult as the tumor affects the child’s eye movement, breathing, swallowing, and balance. Most children with DIPG develop double vision during their last few months. They are also unable to walk, talk, eat, and drink.